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Colon, Interrupted

Everyone Has To Start Somewhere

Though the journey of 1000 miles starts with a single step, at some point you’ll still need to go to the bathroom.

Hello and welcome! First off, you may be asking “why name a blog Colon, Interrupted“? Short answer: for a blog about Crohn’s and ostomy issues, it offers less of a chance for confusion than an alternate title like, “Colonel Mustard in the Drawing room with a colostomy bag”. Okay, that wasn’t such a short answer. In any case, it’s catchier.

I’ll be posting a bit on whatever strikes my fancy but with the intention of focusing on my experiences living with Crohn’s and an ostomy. At least I’ll be making a concerted effort to circle back around to those subjects if I stray too far off topic. My qualifications? That’d be a lack of a proper anus. Or as I once told an old friend I hadn’t seen in a decade, as an prelude to talking about my medical adventures, “I’m not the same a-hole I used to be”. Thank you very much, I’ll be here all week! Try the prime rib.

Its going on six years now since I’ve been using a colostomy bag, so I’ve got a few stories and experiences to share. I’ll mention what works or what hasn’t worked for me, tips I’ve discovered and  problems or issues involved with living with Crohn’s and a stoma.

Don’t be shy, feel free to comment and ask questions and I’ll do my best to respond.

One Response to Everyone Has To Start Somewhere

  1. Sorry to hear about your recent UC dsianoigs. Hope you are doing okay. In my years with the disease I was still able to do so many things despite the illness so stay positive and strong:) For many people, their IBD is well-controlled with meds and does not progress. It is good that you are doing lots of research and reading about other people’s experiences early on. Educating yourself about the disease and treatments is so very important. Hopefully my story has helped you see that if your disease ever got severe enough where surgery was needed, losing your colon does not have to stop you from leading a very full life.You are right that this is a very hidden disease. Even people I was close to had no idea I was sick in most cases because I never talked about it and just tried to live my life to the best degree possible with the pain and symptoms. It was crazy because right before going to the hospital with my final flare, when I felt extremely sick and was going to the bathroom over 20 times a day, people were still telling me I looked healthy including my doctor. I had spent the summer hiking and climbing before the severe flare came on. It must have been all that mountain sunshine that gave me the outward glow because I certainly wasn’t glowing on the inside:)

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